Perhaps I have a unique point of view on the topic of children suffering from disease and disabilities by being the father of a medically complex child. I see how our world is not catered to all. My daughter is non-verbal and communicates using American Sign Language. So many times, she will sign simple words like please or thank you to nurses when we’re at the doctor’s office, and her signs fall flat with them. They either think she is blowing a kiss, waving hello, or reaching for something. People look at my wife and I to ask what she is saying. Schools require a foreign language as a provision for graduation. They usually offer German, French, Spanish, or Italian; languages that they may never need to use. I often ponder why ASL isn’t a basic instruction like English is, let alone as an offering for another language in schools. I believe that companies should include basic ASL in their yearly compliance courses so that deaf and/or non-verbal clients and customers feel welcome.
Despite the lack of communication that we have with the “normal” world, we also get stares and words spoken under the breath of a passerby when they see her feeding tube. In the realm of raising a child with a disability, we have it pretty easy. Harper is just as physically active as a typical child and is smarter than the average children her age. There are others whose daily life isn’t as easy as ours. We see children all of the time who are cemented in wheelchairs or attached to ventilators, IVs, and machines to keep their hearts pumping. We know others who are so severely handicapped that they require assisted living facilities to care for their basic needs.
I recently had a conversation with a coworker about why God can allow the suffering of innocent babies. I brought up how sad it made me during our most recent hospital stay to be roomed next to a little girl who had no visitors, even on Christmas day. It broke my heart to walk past and see her lying still in her bed, in complete darkness, only surrounded by a stuffed animal. In our discussion, I told my friend how it is commonplace for disabled children, and the elderly, to have no one visit them. No one should be alone. No child should have to live through a long battle with terminal cancer, or never be able to play on the playground with other kids their age. It is a part of the human condition that leaves us scratching our heads and praying for solutions. However, like all things, we can find an answer in Scripture.
I want to dive into the words of our Lord found in Matthew 19:14, where Jesus says, “Let the little children come to me, and do not hinder them, for the kingdom of Heaven belongs to such as these.” These words hold tremendous significance, especially when considering children who suffer from disabilities and diseases. In this verse, Jesus is emphasizing the importance of childlike faith and innocence. He encourages us to welcome children with open arms, for they exemplify qualities that align with the values of God’s kingdom. Now, how does this relate to children facing disabilities and illnesses?
Firstly, we must recognize that the challenges these children and their families endure are not a result of their lack of faith or virtue. Rather, they are a testament to their resilience and strength, embodying the very characteristics that Jesus commends. In their vulnerability, these children become powerful witnesses to the grace and love of God.
As a community of believers, it is our responsibility to ensure that we do not hinder these precious ones from coming to Jesus. We are called to create an environment that fosters inclusion, compassion, and understanding for our fellow brothers and sisters. By doing so, we embody the essence of Christ’s teachings and create a reflection of the Kingdom here on Earth.
In our journey to embrace the Kingdom, we are to learn from these children. Their unique perspectives and challenges provide us with an opportunity to grow in selflessness, empathy, and patience. Through our collective efforts, we can create a supportive community that acknowledges the intrinsic value of every individual regardless of their cognitive or physical abilities.
Furthermore, our response to those with health conditions or impairments should extend beyond mere acceptance; it should involve active advocacy for their rights, access to medical care, and education. By championing their cause, we become instruments of God’s justice and love, working to break down barriers that hinder these people from flourishing.
There are several ways we can help our families with disabilities:
• Inclusive Communities: Foster inclusive environments within our churches and communities. Ensure physical accessibility and create programs that accommodate diverse needs.
• Education and Awareness: Promote understanding, and awareness about different disabilities. Educate the community on how to interact with and support people with diverse needs.
• Advocacy: Advocate for policies that promote inclusivity in education, healthcare, and public spaces. Support organizations working towards the rights and well-being of disabled individuals.
• Support Families: Provide emotional and practical support to families caring for loved ones with disabilities. Offer respite care, assistance with daily tasks, or even a listening ear.
• Medical Assistance: Collaborate with medical professionals and organizations to ensure children receive the proper medical care, therapies, and interventions tailored to their specific needs.
• Educational Opportunities: Create or support educational programs that cater to diverse learning styles. This includes adapting a curriculum and providing resources.
• Financial Assistance: If able, offer financial support for medical treatments, therapies, and assistive devices which can be costly for the families. Daily living expenses tend to take a deeper toll on the family.
• Volunteerism: Volunteer time and skills to work directly with adults and children with disabilities, or support organizations that focus on their well-being.
• Prayer and Spiritual Support: Include them in prayer and spiritual activities. Foster a sense of belonging within the spiritual family.
• Promote Positive Narratives: Share stories and experiences that highlight the abilities and achievements of children with disabilities, challenging stereotypes and fostering a more inclusive mindset.
By actively engaging in these ways, we contribute to creating a world where children with disabilities are not only accepted but also empowered to thrive. Matthew 19:14 challenges us to view those with disabilities through the lens of Christ’s love. Let us be a community that embraces, welcomes, and advocates for these precious souls recognizing that in doing so, we are actively participating in the realization of God’s Kingdom on Earth. May our hearts open with intentional actions and our love be unconditional, for the Kingdom of Heaven truly belongs to such as these.